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3 Steps to Managing HAE in Your Daily Life

RECOGNIZE YOUR TRIGGERS
Be aware of events, changes in medications, or situations that may precede or trigger an HAE attack. For many people, emotional or physical stress can prompt a swelling episode. For others, attacks may occur at random without any noticeable triggers.
1. Keep a journal of the location and frequency of your attacks, including their duration.
2. Be aware of patterns that may occur (such as emotional triggers, medication changes, and, if you’re a young woman, the timing in relation to your menstrual cycle).
3. Record any physical warning signs or symptoms (such as tingling, fatigue, nausea, flu-like symptoms, feeling of warmth, or a rash), which can precede some attacks. Early recognition can lead to early treatment and may help thwart a full-blown attack.

AVOID TRIGGERS
Avoid situations that may spark an attack. And talk to your doctor before exposure to any known triggers, such as dental work, surgery, or childbirth.
1. For women, do not use contraceptives that contain estrogen.
2. If emotional stress is a trigger, avoid highly charged situations. Enlist the help and support of others when overwhelmed, and use coping strategies that work for you.
3. Discuss with your physician the possibility of short- or long-term preventive therapy, if the situation is unavoidable or necessary.
4. Plan in advance for circumstances that may prompt an HAE event, and structure your daily life to avoid as many potential triggers as you can.

BE PREPARED FOR AN ATTACK
For many people with HAE, an attack is not preventable. In that case, the best policy is to be prepared.
1. Educate family, loved ones, and coworkers about your condition.
2. Before you travel, locate a nearby treatment center.
3. Discuss your medical condition and dental work options with both your HAE specialist and your dentist, especially if you are considering extractions or other dental work.
4. Talk to your doctor if you are a candidate for a medical surgical procedure.
5. Keep a diagnosis letter from your doctor with you at all times.
6. Carry an emergency patient information card that communicates your medical needs — in the event that you’re unable to relate important medical information. This card should:
  1. Identify your condition
  2. Include a letter of diagnosis from your physician
  3. Provide family emergency names and numbers
    Supply your doctor emergency contact information

Document Published: 12/21/2006 3:42 PM
Last Updated: 12/21/2006 3:42 PM