Finding More Resources

Visit our resource center for additional information on HAE or to pose questions to our experts.

HAE and You Family Brochure
"HAE and You: A Resource for Families With Hereditary Angioedema" is a helpful brochure for families who are new to the HAE community and for those in the HAE community who wish to educate other family members, friends, teachers, school nurses, and others who may come in contact with this rare condition.
Download pdf now

About the I.M.P.A.C.T. Clinical Studies
CSL Behring has sponsored two studies. Both have used human C1-INH concentrate to treat acute attacks of HAE, which has been used to treat HAE patients in Europe for more than two decades.

HAE Community
Patient Support Groups and other web sites that feature information on hereditary angioedema (HAE).

HAE Glossary
Glossary terms pertaining to hereditary angioedema (HAE).

Where can I find out about support groups for HAE families?

It is a good idea for HAE patients of all ages to prepare a "Patient Information Card" that includes key family and medical contact numbers and what to do during an attack until medical attention is available.

Although HAE affected nearly a dozen relatives from her father's side of the family, her mother thought HAE was all in their mind. It wasn't. It was in their genes.

Last Modified Date: 6/22/2009 3:55 PM