Additional Information

Physician Resources

The following Web sites are excellent sources of information about hereditary angioedema (HAE), for physicians and patients alike.

• American Academy of Allergy Asthma and Immunology www.aaaai.org
• American Academy of Emergency Medicine www.aaem.org
• PubMed (Clinical Articles) www.ncbi.nlm.nih.gov/entrez/query.fcgi?DB=pubmed

Other Resources for Information About HAE

• Medline Plus www.nlm.nih.gov/medlineplus/ency/article/001456.htm
• WebMD www.webmd.com/hw/allergies/nord98.asp
• eMedicine from WebMD www.eMedicine.com
  www.emedicine.com/derm/topic24.htm
  www.emedicine.com/med/topic420.htm
• Wikipedia en.wikipedia.org/wiki/Angioedema

Patient Organizations - North America

• Hereditary Angioedema Association (USA)
• Tri-State Hereditary Angioedema Association (USA)
• Canadian Hereditary Angioedema Society (Canada)

HAE Organizations - International

• International: International Patient Organization for C1-Inhibitor Deficiencies
• Argentina: Asociación Argentina de Angioedema Hereditario
• Austria: Österreichische Selbsthilfegruppe für Hereditäres AngiooEdem
• Belgium: HAE hereditary angiooedema AOH odème angioneurotique héréditaire inhibiteur C1 estérase
• Denmark: Patientforeningen HAE Denmark
• France: Association des Malades Souffrant d'Angio-Oedèmes par déficit en C1 inhibiteur
• Germany: HAE - Vereinigung e.V.
• Hungary: HAENETWORK
• Italy: A.A.E.E. - Voluntary association for the battle against, the study and the therapy of hereditary angioedema
• Netherlands: Hereditair Angio Oedeem (HAE) & Quincke's Oedeem (QE)
• Norway: Hereditært Angioødem (HAE)
• Poland: Hereditary Angioedema (HAE)
• Romania: Romanian Haereditary Angioedema Network
• Spain: Asociación Española de Angioedema Familiar
• Switzerland: Schweiz. HAE-Vereinigung
• United Kingdom: Primary Immune Deficiency Association

Disease Websites

• NORD - National Organization for Rare Disorders, Inc. (USA)
• NORD - Rare Disease Community Website (USA)
• European Organization for Rare Diseases (Europe)
• International Register for Physicians treating patients with Hereditary Angioedema (Europe)
• Initiative zur Diagnose und Therapie des hereditären Angioödems (Austria)
• German Society for Angioedema Research GSAR (Germany)
• HAE - Hauptsache alle erkennen (Germany)
• Information Centre for Rare Diseases and Orphan Drugs (Bulgaria)

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