If you need to find a doctor, the US Hereditary Angioedema Association can help you find an HAE specialist in your area.

Have an appointment soon?

Answer a few questions to get a printable report that can help you have a better discussion with your doctor. Download a blank guide to complete later or fill out the steps to create a custom guide below

STEP 1 of 4 - Diagnosis

Have you been diagnosed with HAE?

YES
NO
Please select "Yes" or "No".
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STEP 2 of 4 - Background
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STEP 3 of 4 - Symptoms
Please select area(s).
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STEP 4 of 4 - Treatments
YES
NO

All patients should have an on-demand, or acute, treatment plan, even if they are on preventive therapy. Current preventive therapies are not 100% effective and breakthrough attacks may occur.

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STEP 2 of 3 - Background
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STEP 3 of 3 - Symptoms
Please select symptom(s).
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Finish

Your doctor discussion guide is complete
Download your guide to save and print, or send the guide by email. Be sure to share your answers at your next doctor appointment.

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TIP: Ask your doctor about getting an HAE Identification Card and keep it with you at all times in case of an emergency.

Diagnosis letters

Bring these customizable letters to your HAE specialist to complete so you can let other doctors, dentists, or your child’s school know about the condition.

Download diagnosis letters

Managing HAE

Learn how you can manage HAE and the types of treatments available.

See treatment options

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