Useful Links

The following Web sites are excellent sources of information about hereditary angioedema (HAE), for physicians and patients alike:

American Academy of Allergy Asthma and Immunology www.aaaai.org
American Academy of Emergency Medicine www.aaem.org
PubMed (Clinical Articles) www.ncbi.nlm.nih.gov/entrez/query.fcgi?DB=pubmed
US Hereditary Angioedema Association www.haea.org
Canadian Hereditary Angioedema Network (CHAEN) http://www.haecanada.com/m.php?p=ehome

Other resources for information about HAE

Medline Plus www.nlm.nih.gov/medlineplus/ency/article/001456.htm
WebMD www.webmd.com/hw/allergies/nord98.asp
eMedicine From WebMD www.emedicine.com
www.emedicine.com/derm/topic24.htm
www.emedicine.com/med/topic420.htm
Wikipedia en.wikipedia.org/wiki/Angioedema

Patient organizations: North America

Hereditary Angioedema Association (HAEA)(US)
Canadian Hereditary Angioedema Society (Canada)

HAE organizations: international

HAE International Community HAEI
Argentina: Asociación Argentina de Angioedema Hereditario
Austria: Österreichische Selbsthilfegruppe für Hereditäres Angioödem
Belgium: HAE hereditary angiooedema AOH odème angioneurotique héréditaire inhibiteur C1 estérase
Denmark: Patientforeningen HAE Denmark
France: Association des Malades Souffrant d'Angio-Oedèmes par déficit en C1 inhibiteur
Germany: HAE - Vereinigung e.V.
Hungary: HAENETWORK
Norway: Hereditært Angioødem (HAE)
Poland: Hereditary Angioedema (HAE)
Romania: Romanian Haereditary Angioedema Network
Spain: Asociación Española de Angioedema Familiar
United Kingdom: Primary Immune Deficiency Association

Disease Web sites

NORD: National Organization for Rare Disorders, Inc. (USA)
NORD: Rare Disease Community Web Site (USA)
European Organization for Rare Diseases (Europe)
International Register for Physicians Treating Patients With Hereditary Angioedema (Europe)
Initiative zur Diagnose und Therapie des hereditären Angioödems (Austria)
German Society for Angioedema Research GSAR (Germany)
HAE: Hauptsache Alle Erkennen (Germany)
Information Centre for Rare Diseases and Orphan Drugs (Bulgaria)

Registration

Register for updated information on HAE disease management.

Resources

US Hereditary Angioedema Association (HAEA)

Learn about the HAEA, a non-profit organization that provides a wide range of services, including clinical trial placement, physician referrals, education, and individualized patient case management. Visit HAEA.org